Maryn Cella’s Story – Our Mission

On June 17, 2009 little 3-year old Maryn Cella was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), an aggressive cancer that attacks the pons area of the brain stem. After hearing the devastating news that Maryn had between 9 and 12 months to live, Maryn’s mother and family began the desperate search for the miracle that would save her life.
Maryn’s story and experience has inspired us to create the Maryn’s Hope Foundation to provide hope to families who have children suffering from DIPG by offering financial, educational, and emotional support. We have partnered with other DIPG and other pediatric cancer foundations, pediatric cancer treatment and research institutions,  as well as universities and community agencies to work toward a cure and to provide hope to children like Maryn around the world. We are an active voice for DIPG awareness, education, research, and legislation and are committed to bringing us one step closer to a world without cancer…one person, one pledge, one prayer at a time.

Click Here To Go To Maryn’s Foundation Website

Click here to go to Maryn’s Blog

Nov 6, 2009, I have made the decision to take Maryn to the Burzynski Clinic sooner rather later. We leave next week. It’s been a heart wrenching decision because, whichever choice I make, Maryn’s life will change. I realized that every moment I am not actively doing something her tumor is growing. I had a conversation with a friend last night, telling her that once the tumor starts growing back, it grows like wildefire, faster than before. I got a sick feeling in my stomach and it dawned on me that the honeymoon period the doctor told us about is over. The tumor will not continue to grow at the same rate it did over the past two months. It will grow faster with each passing day. We will be driving to Houston. It would have been nice to fly, but I will need a car once I get to Houston and can’t afford a rental. Plus I need to take my kitchen equipment to make her juice and food once we get there. It is a 23 hour drive, which is not going to be fun. I am waiting to hear back about a time next week to have her Broviac line inserted into her chest. I didn’t want her to have to go through this again. It was partly the reason I wanted to delay her treatment, but delays only give the tumor a fighting chance. We will be in Houston for 3 weeks, so we will be back by the first week in December, definitely in time for Christmas. I spoke with my friend Phil, who took his son to Burzynski. He said 3 weeks is how long it will take. He offered to fly my girls down to be with us for a few days, as well as find us a place to go for Thanksgiving. My girls don’t know yet, they will not be happy. I need to figure out arrangements for them over the next 3 weeks.I need a good mechanic who can look at my car to make sure it’s road ready, and not charge me a fortune. Any recommendations? It is an older vehicle and I’m hoping I won’t have any problems with it on the way down. I also need to figure out where we will be staying while we are down there. I have alot of things to do over the next 6 days, wish me luck!

Note: The above treatment is costing a minimum of $100,000, and the foundation has raised about $30,000 so far. So Maryn needs your help!! Every dollar counts…whatever you can give. Maryn’s Mom, Annette is AMAZING and is doing everything she can to create a healing environment for her sweet , precious daughter, through a whole & raw diet, juicing, kangen water, natural therapies, and attracting wonderful resources all around her 24/7!!! CLICK HERE IF YOU WANT TO HELP ANNETTE (BLOG)